Hi everyone,
So, I’ve finally joined the forum where I’m sure none of us really wanted to join.
I was diagnosed in January 2019 with ALS / MND.
I was originally diagnosed in Dubai where I was living and got 2nd / 3rd opinions in the UK.
I have now moved back ‘home’ after a fabulous 6 years in Dubai, and am beginning to settle down in Northamptonshire near family and friends.
I am worried about the future (both in the short and long term) for my wife and our 2 children, aged 6 & 9.
At the moment the symptoms are mainly in my arms.
My kids just think I have a dodgy hand and they’re both being really good about doing my buttons, opening bottles & cans etc. for me.
At some point though we’ll have to tell them the reality that is MND. This is the most worrying aspect for me.
Any suggestions or advice would be greatly received!
Staying happy, busy and positive though so it’s not all bad! 😃
Thanks guys, and best wishes to you all out there.
Cheers, Iain.
So, I’ve finally joined the forum where I’m sure none of us really wanted to join.
I was diagnosed in January 2019 with ALS / MND.
I was originally diagnosed in Dubai where I was living and got 2nd / 3rd opinions in the UK.
I have now moved back ‘home’ after a fabulous 6 years in Dubai, and am beginning to settle down in Northamptonshire near family and friends.
I am worried about the future (both in the short and long term) for my wife and our 2 children, aged 6 & 9.
At the moment the symptoms are mainly in my arms.
My kids just think I have a dodgy hand and they’re both being really good about doing my buttons, opening bottles & cans etc. for me.
At some point though we’ll have to tell them the reality that is MND. This is the most worrying aspect for me.
Any suggestions or advice would be greatly received!
Staying happy, busy and positive though so it’s not all bad! 😃
Thanks guys, and best wishes to you all out there.
Cheers, Iain.
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