All very new

[Willow]

Hello - my husband has recently been diagnosed with ALS at 33 years old. Alike everyone else on here it’s been tough and we’re taking it day by day, adjusting to a new normal and enjoying the time we have together.
We’ve got a daughter who’s 6 months old and she’s been a delight. She’s put a smile on our faces every day.

I just wanted to say hello, and also say how much the forum has already helped us navigate these early weeks.

X

[Claireflo]

Willow welcome to the forum, sorry to hear about your husband's diagnosis. It is tough to balance dealing with it and enjoying the time you have. I'm sure your lovely daughter helps keep you in the moment and there's so much support and experience available on the forum x

[denise]

Oh willow I am so sorry to hear your news. I'm glad you have found us and we will do our best to support you.

Love and hugs
Xxx

[Ellie]

Willow A warm welcome to the forum, so sorry about your husband's diagnosis - I hope he is doing as well as possible and will have the opportunity to participate in a clinical trial.

Hopefully the forum will continue being a good resource for you both.

Love Ellie xx

[Tabbycat]

Willow welcome to the forum, sorry you find yourself here. It is a great source of information, support and humour.

[Doggymama]

Willow This group is invaluable and has been of huge help to us. Always someone there for a handhold and advice. Sorry you have had to join us but a huge welcome xxx

[Christopher]

Willow
This is the positive place to be for constructive help. I have never received a negative or patronising comment from anyone.

This is a real support group (thanking all those people out there).

Every day is a challenge, but there are always helping hands here. There is even the hug group!

Some people do puzzles. I just try and work out how people have access to so many emojis!!

[Zante]

Willow I too am very sorry to hear of your husband's diagnosis. As everyone have said the forum is a great place for support and advice. The search field is excellent for looking up anything that has been asked and discussed before. So much information and help here . Just try and take 1 day at a time. Knowledge is helpful but reading up too much isn't I found cos it causes panic for the future. Little steps. Keep making the memories each day and have something to look forward to. Thinking of u. Xx

[Piglet]

Willow so sorry to hear about your husband. Glad you’ve joined the forum. It must be very hard for you both at present but your little baby sounds like she brings you both much love. We are hear for us all to discuss anything we wish to, a moan, a rant, a laugh, guidance, advice, all sorts of things. Thinking of you all.xx

[AngieCanuck]

Willow so sorry you find yourself here. It will be challenging, but take it day by day. I hope that you have supportive and helpful family and friends around you, your hubby and little baby.