No announcement yet.

Bulbar symptoms

  • Filter
  • Time
  • Show
Clear All
new posts

    Bulbar symptoms

    Hi guys,

    In a nutshell I've had body twitching for over 9 years which pretty much have been everywhere on my body. I've had MND fear on and off. I saw a neurologist about 8 years ago and got diagnosed with BFS.

    Over the past two years I've developed swallowing problems. Not being able to get rid of phlegm in the back of throat in the morning and certain foods not going down and taking multiple swallows and drink. Last week i started slurring and not being able to enunciate words and it came on very sudden and has been bad every day since. Iv spoke to the doctor and hes moved me up to urgent to see a neurologist as my previous doctor said he wasnt worried.

    I wanted to know if anyone else had swallowing problems first? Then quite sudden speach problems? I can actively feel my tongue not doing what I want it to but the severity is up and down throughout the day.

    at this point i cant see it being anything other than this disease and am quite pragmatic about it.

    I'm 33 with 3 children and due to be married in march.