diagnosed September 2023 als Cheshire Lady 58 .finding this adjustment to this life heart breaking but trying to stay positive for myself and family.
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Julie
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Sorry to read that.
Also Cheshire here (occasionally attend the local MNDA branch meetings and treatment via Walton MDT).
All the best, Dan.2020: odd symptoms. Nov 2021: Hand atrophy.. Mar 2022: Second arm atrophy - Confirmed Apr 2022: MND.
Also Crohn's Disease from 2005ish. (Hi, I'm Dan in Cheshire)...
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Hi Dan went Walton centre Thursday .where I was confirmed it was as ALS I had .Will have to find out when these meetings are and when .
Do you find out lots of information.
Im struggling to get holiday insurance tbh.
perhaps I could get help from attending a group .Thanks for the advice Julie x
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Julie G sorry to hear your diagnosis but lots of support here. Ive been under Walton for 11 years, there is a multidisciplinary team and lots of assistance available as and when you need or want it. A previous Consultant there gave me the advice that, in their long experience, people with Mnd who remained positive did much better.
I've used World First holiday insurance, no problem getting annual cover for Mnd, including worldwide travel. Xx
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A warm welcome to the forum Julie G . I am so sorry for your diagnosis. It's such a shock and I found the early days overwhelming.
We have an annual travel insurance policy with All clear although ours only covers European travel. They are really helpful.
Take care of yourself and do post if you have any questions, when you are ready. The forum is a good place for understanding and support.
Love Debbie x
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Hi Julie. Sorry this is a little late to reply but for some reason I missed this initial post.
Welcome to the forum. Its very early days yet so its all bound to feel quite daunting and overwhelming.
there is a lot of information on the forum and help and guidance. Am sorry u find yourself here. XxDiagnosed June 2022. Confirmed MND. Limb onset. Symptoms started November 2020.
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Julie G welcome to the forum. I hope you get insurance sorted and get some travel opportunities. I always enjoy something to look forward to xDiagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.
Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!
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