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Julie

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    Julie

    diagnosed September 2023 als Cheshire Lady 58 .finding this adjustment to this life heart breaking but trying to stay positive for myself and family.

    #2
    Sorry to read that.
    Also Cheshire here (occasionally attend the local MNDA branch meetings and treatment via Walton MDT).
    All the best, Dan.
    2020: odd symptoms. Nov 2021: Hand atrophy.. Mar 2022: Second arm atrophy - Confirmed Apr 2022: MND.
    Also Crohn's Disease from 2005ish. (Hi, I'm Dan in Cheshire)...

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      #3
      Hi Dan went Walton centre Thursday .where I was confirmed it was as ALS I had .Will have to find out when these meetings are and when .
      Do you find out lots of information.
      Im struggling to get holiday insurance tbh.
      perhaps I could get help from attending a group .Thanks for the advice Julie x

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        #4
        Hello Julie if you type travel insurance into the search bar towards the top of this page you will find some member’s recommendations for you to try.

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          #5
          Julie G A warm welcome to the forum, Julie, sorry you've had to join us.

          Happy travels! xx
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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            #6
            Hi Julie, welcome to the forum x
            I’ve used it’s so easy travel insurance to cover my husband for our recent trips. They’ve been very helpful. X

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              #7
              Hi Julie, sorry you find yourself here but you will find we are very kind and supportive bunch ❤️
              Foxes Never Quit 💙

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                #8
                Julie G Hi welcome to the forum. Sorry for your diagnosis. It’s my husband who has MND, we are also from Cheshire and under the care of Walton. We have no complaints and feel very supported by them. You will find the forum informative, kind, humorous and you can ask anything.xx

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                  #9
                  Julie G sorry to hear your diagnosis but lots of support here. Ive been under Walton for 11 years, there is a multidisciplinary team and lots of assistance available as and when you need or want it. A previous Consultant there gave me the advice that, in their long experience, people with Mnd who remained positive did much better.
                  I've used World First holiday insurance, no problem getting annual cover for Mnd, including worldwide travel. Xx

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                    #10
                    A warm welcome to the forum Julie G . I am so sorry for your diagnosis. It's such a shock and I found the early days overwhelming.

                    We have an annual travel insurance policy with All clear although ours only covers European travel. They are really helpful.

                    Take care of yourself and do post if you have any questions, when you are ready. The forum is a good place for understanding and support.

                    Love Debbie x

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                      #11
                      Hi Julie and sorry re the diagnosis. The advanced search really is a good way of reading previous posts on subjects .
                      Diagnosed May 2021 bulbar onset als.

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                        #12
                        Julie G welcome to the forum.
                        Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive 😺.

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                          #13
                          Hi Julie welcome to the forum. I'm sorry to hear of your diagnosis but you'll find lots of useful information abd support here.

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                            #14
                            Hi Julie. Sorry this is a little late to reply but for some reason I missed this initial post.

                            Welcome to the forum. Its very early days yet so its all bound to feel quite daunting and overwhelming.
                            there is a lot of information on the forum and help and guidance. Am sorry u find yourself here. Xx
                            Diagnosed June 2022. Confirmed MND which is currently PLS. Limb onset.

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                              #15
                              Julie G welcome to the forum. I hope you get insurance sorted and get some travel opportunities. I always enjoy something to look forward to x
                              Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.

                              Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!

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