Announcement

Collapse
No announcement yet.

Hello Everyone

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    Hello Everyone

    As I joined the Forum today, I thought I would say hello.
    I was diagnosed with MND in December 2022 and am now on the fast track to a new life.
    I have had a look through some of the posts and I think that I will enjoy your company in the months ahead.
    Bye for now.

    #2
    Sorry to read you have MND.
    Noticed your location on profile - I'm between Oxford, Winchester, Marlborough quite often, but live up north and not sure what resources you have locally.
    2020: odd symptoms. Nov 2021: Hand atrophy.. Mar 2022: Second arm atrophy - Confirmed Apr 2022: MND.
    Also Crohn's Disease from 2005ish. (Hi, I'm Dan in Cheshire)...

    Comment


      #3
      MonkeyMike welcome to the forum.
      Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive ๐Ÿ˜บ.

      Comment


        #4
        MonkeyMike A warm welcome to the forum, Mike, sorry you've had to join us.

        Looking forward to getting to know you. xx
        โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

        โ€‹

        Comment


          #5
          Hi Mike,
          Sorry you find yourself here but I hope you find some comfort and companionship here in the threads ๐Ÿ‘๐Ÿ˜Š

          see you around,
          James
          Foxes Never Quit ๐Ÿ’™

          Comment


            #6
            MonkeyMike Hi Mike, a warm welcome from me. As has been said before I am sorry that you have had to join us, I hope you will find the forum useful, supportive fun and helpful. xx
            Diagnosed June 2022. Confirmed MND which is currently PLS. Limb onset.

            Comment


              #7
              Hi Mike. Hope you get lots of info from the forum members. Its been my life line.
              well done for braving your first post.
              Diagnosed May 2021 bulbar onset als.

              Comment


                #8
                MonkeyMike Hi Mike.welcome to the forum. Everything is very daunting at first, please donโ€™t hesitate to vent any emotions of any kind on here.you will find empathy and understanding. Xx

                Comment


                  #9
                  Hi Mike
                  welcome to the forum.

                  Comment


                    #10
                    Hi MonkeyMike welcome to the forum, there's loads of knowledgeable people on here so if you have any questions someone will have some useful advice (especially our resident expert Ellie!).

                    Comment


                      #11
                      MonkeyMike welcome to a very supportive forum ๐Ÿ™‚

                      Comment


                        #12
                        Hi Mike. Welcome aboard. You are in very good and supportive company.

                        Comment


                          #13
                          Thank you for your kind and supportive words. Reading through some of the posts there is a lot of anguish and fear, but also the inspirational and heroic. I can see its a transition from at first being pulled uncontrollably into a black hole and then realising that gradually you are being pulled back. Pulled back by the love and support from the people around you, strangers even! I have decided not to fight the loss (I don't mean the physical loss, I will keep doing the physio and take the tablets) but to accept that MND is a new way of being me. I learnt this from many years living with people with learning difficulties. People at the margin of society have so much to give and teach to the rest of us.

                          Comment


                            #14
                            Originally posted by MonkeyMike View Post
                            I have decided not to fight the loss - but to accept that MND is a new way of being me.
                            That's probably the best way to get yourself into the right place to deal with this (and I will shamelessly steal that quote )
                            Welcome to the gang.

                            Hi, I'm Eddie.
                            Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
                            Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
                            Still wondering what the future will bring.

                            Comment


                              #15
                              You're welcome Eddie, power to you!

                              Comment

                              Working...
                              X