In a strange way, it feels good to be part of the MND ‘family’, even though needless to say, I’d rather not have been diagnosed with this wretched disease back in March. It’s certainly hard to get your head around, isn’t it? I know every one affected has been, or is still going through it. I’ve found one of the worst emotions - in addition to the obvious being angry, and ‘why me’ thoughts, it’s feeling guilty at what I’m going to be putting the family through, not to mention the extreme frustration at not being able to do anything about it ….
However, having read some other posts on this forum, I know I should be grateful that mine, so far, has progressed fairly slowly. Having said that, this time last year as a fit and healthy 71 year old, I was still playing tennis and enjoying long walks. Now I”m finding even very short walks a huge effort and exertion of any kind is unbelievably tiring.
But, I’m trying to be positive and focus more on what I can still do, not on what I can see slipping away.
With that in mind, I decided that while I can, I want to raise as much as I can for the MNDA, so have set up a Fightback Fund, and with just my first fundraiser - a quiz set just before Christmas and sent to family and friends, many of whom passed it to others, I’ve already raised just over £860. That feels amazing and has given me something really positive to concentrate on. I’m now thinking about what I can do next. At least it makes me feel that something good is coming out of all this.
It clearly won’t come in time for those of us who are posting now, but if it means that in some small way, I might have helped fund that vital research which eventually will lead to finding a cure for others in future, then I feel I’ve done my bit!
So, that’s my first post to say hello!
PS - I should also say that if anyone would like to use my quiz for their own fundraiser, I’d be more than happy to share it. I’m sure there would be ways and means …..!!
However, having read some other posts on this forum, I know I should be grateful that mine, so far, has progressed fairly slowly. Having said that, this time last year as a fit and healthy 71 year old, I was still playing tennis and enjoying long walks. Now I”m finding even very short walks a huge effort and exertion of any kind is unbelievably tiring.
But, I’m trying to be positive and focus more on what I can still do, not on what I can see slipping away.
With that in mind, I decided that while I can, I want to raise as much as I can for the MNDA, so have set up a Fightback Fund, and with just my first fundraiser - a quiz set just before Christmas and sent to family and friends, many of whom passed it to others, I’ve already raised just over £860. That feels amazing and has given me something really positive to concentrate on. I’m now thinking about what I can do next. At least it makes me feel that something good is coming out of all this.
It clearly won’t come in time for those of us who are posting now, but if it means that in some small way, I might have helped fund that vital research which eventually will lead to finding a cure for others in future, then I feel I’ve done my bit!
So, that’s my first post to say hello!
PS - I should also say that if anyone would like to use my quiz for their own fundraiser, I’d be more than happy to share it. I’m sure there would be ways and means …..!!
Comment