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Improving MND Care Survey - we'd like to hear your views

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    Improving MND Care Survey - we'd like to hear your views

    We've launched our latest Improving MND Care Survey, focusing on people living with motor neurone disease and their carers.

    The survey asks questions around health, social and continuing care experiences. The information gathered will provide invaluable insight into the experiences of people and help to shape our future priorities and activities.

    Previous surveys have resulted in changes to Government policies, including the end of benefits re-assessments for those living with MND who receive the enhanced rates of daily living and mobility for PIP.

    If you are living with MND or caring for someone living with MND, we would encourage you to complete the survey as it really can make a difference by influencing the work we do. The more complete a picture we get of MND care in England, Wales and Northern Ireland, the better for people with MND and their carers.

    To request a paper version or if you require a translated or large print version, please contact MND Connect by email or call on 0808 802 6262.

    The last day for responses is 19 April 2019.

    We will share the findings of the survey later this year.
    Our working hours are Monday to Friday 8:30am until 5pm

    #2
    I completed the survey yesterday. Lynne
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

    I'm staying positive and taking each day as it comes.

    Comment


      #3
      Only just came across this so have just done it- worth doing
      Always happy, why moan when you can smile
      (Paul in London)

      Comment


        #4
        Originally posted by pje15 View Post
        Only just came across this so have just done it- worth doing
        Or maybe not 🤔 👇
        Originally posted by Admin_MND View Post
        The last day for responses is 19 April 2019.

        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

        Comment


          #5
          Originally posted by Ellie View Post

          Or maybe not 🤔 👇
          Thanks Ellie,so why did it let me complete it then, and more to the point take it down if it closed 4 years ago
          Always happy, why moan when you can smile
          (Paul in London)

          Comment


            #6
            Originally posted by pje15 View Post
            ... so why did it let me complete it then, and more to the point take it down if it closed 4 years ago
            Because that would have been the sensible thing to do 😏
            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

            Comment

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