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| Welcome | ||||||
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Forum Announcements & Help
Having trouble with using the forum? Then post in here and Admins will answer any questions you may have.
Topics: 55
Posts: 617
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55 | 617 |
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MND Association News
Developments and news updates on the work of the MND Association.
Topics: 28
Posts: 198
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28 | 198 |
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Introduce Yourself
If you are new to the forum then why not introduce yourself here? Only include information which can be made public.
Topics: 433
Posts: 7,196
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433 | 7,196 |
Yesterday, 13:00
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| Motor Neurone Disease General Discussion | ||||||
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Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
Topics: 1,429
Posts: 21,667
Last Post:
Covid and aftermath
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Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
Topics: 28
Posts: 344
Last Post:
Lost my beautiful sweetheart
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Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team.
Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 265
Posts: 3,184
Last Post:
Bulbar symptoms and clean EMG
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265 | 3,184 |
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Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 135
Posts: 2,582
Last Post:
Paradoxical breathing - are we near the end
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135 | 2,582 |
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Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
Topics: 189
Posts: 2,374
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189 | 2,374 |
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Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
Topics: 37
Posts: 359
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37 | 359 |
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| Daily living with MND | ||||||
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Travel, mobility and adaptations
Getting around can have a huge impact on daily living with MND. This is a place to ask those important questions around wheelchairs, transport and vehicles, as well as home adaptations.
Topics: 134
Posts: 1,756
Last Post:
Cruising made possible
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134 | 1,756 |
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Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 232
Posts: 2,420
Last Post:
NIV mask sore
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232 | 2,420 |
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Finances
Help with financial support, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice, writing wills and our support grants.
Topics: 119
Posts: 1,341
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119 | 1,341 |
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| Miscellaneous Discussion | ||||||
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Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 288
Posts: 16,995
Last Post:
Pack a shoe box for a child🤶🎅
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288 | 16,995 |
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