Hello! I’m Pauline

[Pauline H]

In a strange way, it feels good to be part of the MND ‘family’, even though needless to say, I’d rather not have been diagnosed with this wretched...

[Zante]

For the last 2 or 3 weeks at night my right arm is falling asleep and getting a lot of cramp. I wake during the night and cant move the arm at all. To...

[JudyR]

I'm new to this forum, I was diagnosed on the 5th January 23, with MND als which is fast progressing, I've gone through the emotions from being angry...

[Purpletunes]

My sister and I used to message one another asking how is the mothership today?

There were always funny exchanges of what tasks she'd sneak...

[Aadam]

Hi

My Dad feels extremely cold when using the NIV due to the cold air

Has anyone else experienced this and found a solution?...

[Derbyram21]

Hi Everyone a couple of weeks ago I was prescribed low level morphine patches one a week . However I pointed out that they are not waterproof so either...

[Espeat]

Hi all,

This is my first time on a forum; I decided to join having read the tremendous support and guidance that you have all shown to others....

[Claireflo]

Sorry more mucus discussions! After seeing a different consultant Dad has started trying hyoscine patches 1.5 mg, one patch for 72 hours. The first day...

[KimB]

Has anyone had this test. They have started using it pre-diagnosis and may be using it to track progression. The thing about it is that it is non specific...

[ellie256]

My beautiful mum passed away on the 30th of December from covid, she was diagnosed with MND in January of last year and was only 56. Her name was Ann...