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Parenting while living with a MND
First off, I am definitely complaining here and I’m sorry I’m advance. But I am SO tired!! My daughter has been ill since Friday, with a sore throat,...
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Everything ALS Zoom is at 7EST US
Immunity, Virus and the Role of Inflammation in ALS
Zoom Meeting:
https://us02web.zoom.us/j/9696329782
Password:...
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Coughing - any ideas for managing?
Hi, my dad was diagnosed last November and things are moving fairly quickly. We are adapting his house and managing most things ok, but finding the deterioration...
- Likes 1
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Scrunched up painful toes.
Chris has really scrunched up on toes, spasticity really. However these toes are getting sore in general.
His hands are the same but we can put...
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Online peer-to-peer support programme for carers of MND
Understanding the impact of a virtual peer support programme on psychological wellbeing and caregiver burden n family caregivers of people with MND...
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NIV mask sore
Hi. I’m sure this has been brought up before and I’ve tried searching but …….. I’ve developed a sore on the bridge of my nose from using my...
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Cruising made possible
I want to share what I think is a heart warming story about two of my local group members. I do have their permission as they both work tirelessly to...
- Likes 1
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Fun and games
My hubby and I have been left to our own devices after having the manual hoist delivered and OT round to show us what to do. My cough assist was delivered...
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Thank you Ellie
Just to say I really don't know what we would do without Ellie round here. I've just read another of her well thought out, informed and insightful replies...
- Likes 11
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