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Hello! I’m Pauline
In a strange way, it feels good to be part of the MND ‘family’, even though needless to say, I’d rather not have been diagnosed with this wretched...Last edited by Pauline H; Yesterday, 16:03.
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arm falling asleep at night?
For the last 2 or 3 weeks at night my right arm is falling asleep and getting a lot of cramp. I wake during the night and cant move the arm at all. To...
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Hello
I'm new to this forum, I was diagnosed on the 5th January 23, with MND als which is fast progressing, I've gone through the emotions from being angry...
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The mothership
My sister and I used to message one another asking how is the mothership today?
There were always funny exchanges of what tasks she'd sneak...
- Likes 3
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NIV - Cold Air
Hi
My Dad feels extremely cold when using the NIV due to the cold air
Has anyone else experienced this and found a solution?...
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Patches
Hi Everyone a couple of weeks ago I was prescribed low level morphine patches one a week . However I pointed out that they are not waterproof so either...
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All Happening So Fast
Hi all,
This is my first time on a forum; I decided to join having read the tremendous support and guidance that you have all shown to others....
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Hyoscine patches
Sorry more mucus discussions! After seeing a different consultant Dad has started trying hyoscine patches 1.5 mg, one patch for 72 hours. The first day...
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Neurofilament Light Chain Test
Has anyone had this test. They have started using it pre-diagnosis and may be using it to track progression. The thing about it is that it is non specific...
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My beautiful mum
My beautiful mum passed away on the 30th of December from covid, she was diagnosed with MND in January of last year and was only 56. Her name was Ann...
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