I might have known you’d have excellent advice! :-)
I was in touch with my MND clinic today and they suggested increasing my Carbocistein...
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Saliva problems
Hi all
I’m sure this has been asked before so apologies for the repetition, but I’m having trouble with my saliva at the moment. It’s...
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Thanks Debbie & Ellie
Good idea about taking the feed via a syringe while I slowly build up my tolerance to the pump. I don’t like...
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Thanks Ellie
To say I’m fed up is an understatement! Last week was one of my toughest yet since diagnosis. I’m losing weight...
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Hi Ellie
Not good unfortunately. I developed tendonitis and was put on cocodamol which I was the cause of what turned into chronic constipation,...
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I think I have a back pack that the Abbott nurse gave us somewhere- we’ll dig it out as that will be ideal for pootling about, as you say. :-)...
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Hi all
I’m pretty sure it’s not an underlying problem as the diarrhoea was only happening in the morning. Last night I had 600ml over...
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Hi Ellie
Thanks so much, this is, as ever, really helpful. When you say you take Lansoprazole, what form is that in? I'm on it too, tablet...
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Thanks Rachel
I’ll speak to my dietician again and try doing it over a longer period.
Regards
Sarah
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Question about overnight pump feeding
Hi
I’ve been pump feeding overnight for a short while now but wake each morning and have a dose of diarrhoea. We’ve tried a couple...
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Advice from those who pump feed
Hi all
I’ve been pump feeding overnight for a short while now but wake each morning and have a dose of diarrhoea. We’ve tried a couple...
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Oh Mark, this is such sad news. Thank you for taking the time to tell us and explain the circumstances. I struggle with my diagnosis too a lot of the...
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Hi Sarah
I’ve just had a Headmaster’s neck support fitted and it’s fab. Not nearly as scary as its name suggests!
https://w...
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Thanks all - I hope you continue to enjoy it. It’s quite therapeutic for me!
Sarah x
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I’ve started a blog!
After some (not so) gentle persuasion, I’ve decided to start a blog on my life as it is now, living with MND. For the most part these will be cheerful...
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