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[Suefromwakey]

Absolutely NOTHING!

[Suefromwakey]

After 2 years of faffing about with consultants and the many many tests Albert was diagnosed with PMA and now has total atrophy from the waist down, he's...

[Suefromwakey]

We bought 2 scooters - a travel one which I hoisted into the back of a car and one of the larger ones............the travel one sits in my garage not...

[Suefromwakey]

Hello Aidan, sorry you had to come on here, I've found as the carer that you just adapt to this whole saga without particularly realising that's what...

[Suefromwakey]

Janette that looks really lovely and glad you had a nice day the pair of you, congratulations

[Suefromwakey]

Johnny that's appalling init, such a long time and I thought Albert was bad messing him about for over 2 years, this test that test bla bla bla, telling...

[Suefromwakey]

Matthew I sympathise, Albert has big toe gout on occasion and is given Naproxen pain relief which lasts longer than Ibuprofen so allegedly you need to...

[Suefromwakey]

Mike my husband is the same as in hesitancy in even seeing anyone else with MND - he just doesn't want to see it, hear about it, nothing, I don't think...

[Suefromwakey]

Blimey this is like something out of 1984 ! Love the technology though, what a different world we live - I was 12 before I used a telephone and when...

[Suefromwakey]

"Finally.....Sue - do your really do that all on your own, I really don't know how I would manage without the carers. Our CHC package has just been...

[Suefromwakey]

I hoist Albert fully now, he wears shorts and has done so for the past 12 months and never wears undies,

To do it I lay him fully down on...

[Suefromwakey]

Actually Shelly you don't actually need a DS 1500 to get PIPs............Albert got his award before he was even diagnosed, He got the award Jan 20 and...

[Suefromwakey]

Matthew seriously you could not mek that up

[Suefromwakey]

Byron, like Matthew says they will all start to come............we felt that no one knew of us at the begining...............then it became a complete...

[Suefromwakey]

Well thanks all - definitely some possible solutions here, now I know this I will be in a better position for the OT visit Friday,

Cheer...