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My wonderful Mam
My Mam Pauline passed away in the early hours of this morning peacefully with us around her. Thank you to everyone on this forum for the support you give...
- 2 likes
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Thank you Matthew, Jane & Ellie xx
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Thanks for your kind words Ellie. Is that right about the NIV??
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Nearing the End
Hi
My wonderful Mam is at the end of her battle with this hideous disease. She has been asleep now for 6 days, is on her NIV 24/7 and no...
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Hi Georgia
oh I completely understand how you are feeling, it’s a carbon copy of my journey over the past 12 months. My Mam was diagnosed...
- 5 likes
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Syringe driver
Hi everyone
My wonderful Mam has gone onto a syringe driver on Thursday and we have been told it’s a matter of weeks not months. 11 months...
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Thanks everyone, I have contacted her MND team at my hospital and they are getting someone to call me. Hayls your message was spot on and clear. Matthew...
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Showering and hair washing
Hi, just after some advice.
My wonderful Mam is 76 and has bulbar. She is getting weaker by the day and is really struggling showering and...
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Hi Jill, sorry to hear you are a new member to this group. My Mam who is 76 was diagnosed with bulbar in November last year so if you have any questions...
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I know what you are saying. My Mam’s voice is poor but she can still speak but the other day someone asked me if she took sugar in her tea, when Mam...
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Sorry Ellie can I ask you one more thing? Can the laxido in the warm water that you mentioned to in the peg?
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Oh really? Thanks so much Ellie, will give that a try. Fingers crossed xx
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Thanks Matthew, yes Mam is fully peg now but today is a very difficult day. We need a movement!
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