Rip mary cross

[Mary C]

It’s with a heavy heart that I write to inform this forum that my mother, Mary across, passed away peacefully in the early hours this morning 19.2.22...

[Mary C]

Done
Mary

[Mary C]

Hi Rosemary..glad you got some advise.
As I mentioned before I chose not to use the NIV.Decided to rely on palliative care team whilst I go through...

[Mary C]

Hi Lynne,
So many things for you to think about.
Hope PEG goes well and stoma gets sorted.
My hands are getting worse now as is breathing...

[Mary C]

Lynne K
So sorry you have a lot going on right now

I had a RIG fitted June 2021.I couldn’t cope with NIV so had in depth talks with...

[Mary C]

Lynne K
Best wishes with hospital appointments.
I rely on supplements now and used to it.Like you my dry mouth sends me nuts.Do you find...

[Mary C]

Hi Tinylady
I would guess a chilblain…I had one pre diagnosis and bought chilblain Cream on line which cleared it up.Suggest you get practice...

[Mary C]

Hi Lynne K
I have had a dry mouth since diagnosis 18 months ago.

medication reductions or changes made no improvement,

...

[Mary C]

Also full information on Age Uk fact sheets regarding LPA and wills.

The .GOV site also offers the information.

MND Association...

[Mary C]

Hi MW6,
I agree with Ellie,about palliative / hospice care is needed asap.Maybe your dad would let you attend too if anybody from these teams are...

[Mary C]

Hi, A hospital bed has been mentioned for me.I dread it as the only time I stayed in hospital was to get to get RIG fitted.I barely slept as the pressure...

[Mary C]

LindaB
I had to get a new iPad as not enough storage old one for predictable app.Got that now so just practicing the basics as some live left...

[Mary C]

Hi Lynne
Could your OT email major adaptations department and express the urgency of needing an adaption to property,Outlining any recent falls,...

[Mary C]

Well done Shelly.
best wishes
Maryx