PEG Tube at a late stage

[TinyDancer]

Hi MW6 I just wanted to let you know that we had a similar situation when I was looking after my mum. She was at an advanced stage of bulbar onset and,...

[TinyDancer]

Thanks so much Ellie especially for highlighting the RIG and nasal tube options as possibilities. I highly doubt she's well enough for a PEG at this stage...

[TinyDancer]

Any experience, knowledge or advice massively appreciated, I'm in a right state.

My mum was diagnosed a year ago with Bulbar onset but following...

[TinyDancer]

Bowler, yes of course - thank you x

[TinyDancer]

I wrote this about Mum's MND - just a personal expression of my experience as a carer xx
👇

It started slowly, almost gently
...

[TinyDancer]

Glad you are still in this world and sorry you were in so much pain that it seemed like the best option. Glad you've changed your mind. To say life's...

[TinyDancer]

Welcome back x

[TinyDancer]

I'm glad your GP is trying but sounds like he needs to go further. Is there an MND nurse he can link up with? It just seems to me your GP needs to be...

[TinyDancer]

Sorry if this is a daft response but can't you have liquid morphine? Do you have district nurses coming in or anything? My mum won't accept any contact...

[TinyDancer]

Hi Rubyray,
sorry about your mum. My mum also has bulbar onset but has declined the feeding tube. However, so many seem to find relief when a PEG...

[TinyDancer]

Thanks all, GaryM it is a very supportive group with great humour too - I agree with your tagline. denise Suefromwakey I think the hard aspect of someone...

[TinyDancer]

My Mum (in her 70s) was diagnosed with bulbar onset MND in July 2020. She could hardly speak by then and although slurred speech began 7 months prior,...