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It's definately worth a go. Our MND coordinator (based at hospital) filled out the forms for us and we got a grant from the Doddie Weir Fund for my son...
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Hi Lynne,
Big hugs..
I know that for my husband both the Niv and Peg improved his quality of life, Both take some time to get used to. Hope...
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Yes ,,, all advice/ and your own experiences/ routines welcome. It's good to know that you have all found ways of managing... Today has already gone better...
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Hi all,
Thanks for all this advice.
The carers are fab and experienced in using the hoist. The OT left us with a full sling and a toilet/showering...
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Hoist and trousers...
Morning,
My husband has now moved to a full hoist, legs just too weak for stand assist. However the carers are unsure of how to dress him...
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Thanks, James and Ellie,
Going to give the Ortel C3 a try... the Sheffield/ Taylormade was fine initially, but as head/neck drop became worse we...
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Neck Support
Hi all,
Belated Happy New Year,
Does anyone have any good neck support? My husband has tried several , but tends to find them...
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Thanks everyone for your kind words. It's good to reach out. Our local community team is fantastic. Somtimes it does feel like a full time job coordinating...
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Hi there
Morning all,
I'm coming out of the shadows after reading so many helpful posts on this forum. Husband (now aged 56) diagnosed with MND in 2018....
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