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[Patw]

❤️life is beautiful so love n spread love no matter our situation however sxxt it is ❤️

[Patw]

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[Patw]

So sorry for u both it’s horrendous the first few months but u will get lots of help and love on here 👍 Keep strong and u are not alone x

[Patw]

shelly21 ive had a few bad falls but I’m that stubborn ass who doesn’t want to give in , I think it’s my pride I just got let that go...

[Patw]

Thanks Ellie, I will get my head round it soon x

[Patw]

shelly21 I’m really struggling excepting using a chair,, I know everyone says once they got it they got a new lease of life but I just can’t seem...

[Patw]

shelly21 Yes also bulbar dx in March 2021 but started slurring March 2020 still speaking just 🤦♂️, eating but had a pig just in case , still...

[Patw]

Thanks James...

[Patw]

Hi all my wife has quit her job to care for me but with 3 young children it’s really hard work, I’m really struggling with hands now so need help...

[Patw]

Ellie getting that form was the a right pain in the butt, once I got it tho everything fell into place. My insurance company even paid the mortgage off...

[Patw]

Ellie your an amazing individual x so helpful x...

[Patw]

I’m sorry I can’t help ,, oh the joys of mnd hey 🤦♂️

[Patw]

What I can say is if he’s led down when fitting catheter or condom, that won’t help get him sat up maybe easier...

[Patw]

May start baclofen for my legs soon fed up walking like a thunderbird, I 2 have shoulder pain just take 1 codeine at night and don’t tend to wake up...

[Patw]

I can’t comment as I’m the opposite I want mine to disappear half the time , I hope it’s not mnd as couldn’t cope with that aswell, I hope he...