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[Betty May]

The time element was a crucial thing for us - getting fast tracked for equipment/adaptations in the house. Too many people end up in crisis because councils...

[Betty May]

Hi Shelly

My hubby was given an NIV after an at-home sleep test where he was wired up to a machine all night. This was only a month or so...

[Betty May]

shelly21

You've not been treated properly Shelly - having equipment left with you without proper assessment, somebody needs their backside...

[Betty May]

My husband had to sleep propped up quite early after diagnosis and on a normal bed he found he would just slip down. A hospital bed and 'another bed for...

[Betty May]

Lynne K

That's good Lynne.

Just wanted to send you best wishes for everything you've got on this week. xx ...

[Betty May]

Agghh, no that is not acceptable. Hopefully you (or someone on your behalf) can appeal - can the MNDA help with this I wonder?

Glad you...

[Betty May]

It was something that always bothered my husband. Morphine sulphate and immobility led to constipation and he had to get an enema, thereafter he would...

[Betty May]

TinyLady I'm so glad it's working out for you at the hospice. My husband was only ever an out-patient at our local hospice but he went regularly every...

[Betty May]

I've no idea how to access more smileys than the paltry amount visible but I wanted a good ROTFL smiley for that one, it did make me laugh! (And no pun...

[Betty May]

I remember now that that option was discussed by one of the companies who came to give a quotation for the council. They spoke of the 'supports' (can't...

[Betty May]

TinyLady Just a belated message to say I hope your meeting with the palliative doctor goes well today - you've really been through the wringer and you...

[Betty May]

My husband was keen to try Riluzole - he wanted as much life as possible - but he found it made him tired and nauseous, and because he was struggling...

[Betty May]

Lynne K Really sorry to hear that you are going through so much all at once, it must feel overwhelming, but it sounds as though things are getting sorted...

[Betty May]

Hello everyone - thank you for all your kind messages of sympathy which are so appreciated.

Lynda I'd like to get in touch sometime. These...

[Betty May]

Mole41 My heart-felt condolences for the loss of your Stuart. What a wonderful gift to have, knowing that he was thinking of you and arranging to have...