Search Result

[TinyLady]

A_Owl - can't help with the hoists, but I too got an OT who was an "expert" on MND who was clearly against stairlifts. We tried to muddle through...

[TinyLady]

AngieCanuck- I totally understand this. For a long time I was in this position and it was both exhausting and scary. Because you have to face the fear...

[TinyLady]

Glad to hear from you Doug Carpenter as I had been thinking of you and hoping to see you well enough to be back here.

Sounds like you have...

[TinyLady]

Sending hugs, I have certainly made good use of the ones from you all - and the advice.

I am going to get someone to contact wheelchair...

[TinyLady]

Heather R - can I ask what the district nurse does (apart from good hugs).

Mine just sits down asks why she is there (I had no idea she was...

[TinyLady]

denise - My fighting pants have been firmly attached for weeks. I feel like I am constantly riding a rodeo. But I am hanging on and I hope I can report...

[TinyLady]

Arcadian and Daz A - I just want to second this advice. A private Physiotherapist was fundamental in supporting me and getting my symptoms taken seri...

[TinyLady]

Sending hugs. I've not been on here much. Got so much going on. The fight in me is escalating and hopefully I can post a positive update soon.... you...

[TinyLady]

I'm also extremely grateful to Ellie for her advice and support. I would quite like to be like Ellie when I grow up (not got the balance to be a ballet...

[TinyLady]

shelly21 - I am so upset and shocked to hear you are hitting your head against a brick wall and dealing with endless "chocolate teapots" like...

[TinyLady]

I was told I had no muscle wasting and I definitely do have it as another neurologist and other health professionals have commented. It is fairly limited...

[TinyLady]

shelly21 - I can completely understand this. Having been totally let down and fighting for everything myself I know how draining it is and how it takes...

[TinyLady]

Hairbsb - helps to cut your finger nails 🤣...

[TinyLady]

Welcome Frank!! I hope you find us a friendly and supportive bunch x

[TinyLady]

Hairbsb- I had a steak pie. The pieces of meat were tiny and the pastry just a lid. But it did get totally stuck to my gums and inside my cheeks. My...