United2EndMND

[Onein300]

Many of you are aware of the £50m new commitment to Targeted MND research made here in the UK by our government in November 2021.

We all...

[Onein300]

My firm recommendation is to not discuss with any of us but to speak to your neuro and request genetic counselling.

As you can imagine, this...

[Onein300]

John D Hi there.

re the £50m project please take a read of our update here

https://patientsunited2endmnd.org/2022/02/07/sta...

[Onein300]

John,

I have only the same experiences as you. The MNDA have one hell of a job.

It only occurred to me the other day about...

[Onein300]

Our disease is one tough beast, almost the perfect (if I can say that) enemy. No treatments yet and places huge burdens on sufferers and our families....

[Onein300]

Oh yes nothing can be more true. The rotating door as I call it.

And it brings the rotating door of hyped treatments etc etc.

...

[Onein300]

Be very careful.

Walking sticks are only ever of use in very very early stages. A stick will never break a fall.

They are only...

[Onein300]

Graham,

Oh dear, I said no such thing.

You expressed issues and experiences with the MNDA on totally different subjects and...

[Onein300]

Absolutely you and everyone should be reading good news!!

And there is great news with the £50m commitment of new funds from the U.K. government...

[Onein300]

Mnd connect and Graham.

I have only just seen this post thread.

Graham can you please correct the statement you state about...

[Onein300]

Flex,

Hi there. Yes I am good thank you. I march on still!

Before I respond it's important to note that all experimental treatments...

[Onein300]

Well you don't have to read the other Twitter stuff but it is the platform to share information and get widespread access. As is Facebook.

...

[Onein300]

The general consensus is that we are within a couple of years of treatments for some members of our community. The amount of research has exploded. Once...

[Onein300]

Morning everyone. A short update on our website on the campaign. Subscribe for updates. I sometimes forget to post on this forum. It's on Twitter and...

[Onein300]

My latest 'Devil in the Detail' post on #als #mnd research. The first of 2 parts this week on clinical trial data and questions we should ask to help...