Rig tube security

[Mandy124]

Hi All,
Ibudilast tablets arrived from Japan this week without a problem at a cost of £650 for 1000 10mg tablets.
At 60 mg a day I reckon...

[Mandy124]

Hi Vivek,
Quite simply there is no easy way to get Ibudilast in the UK
There is a drug charity in Holland that will supply it if you get a...

[Mandy124]

Hi Polly,

I know it seems a long while for the appointments to see people but it is quite swift which is also good because hopefully it means...

[Mandy124]

I think the health teams seem to take time to get in motion, have you had any of the mnda association visitors contact you as yet they are not in every...

[Mandy124]

Hi Polly,

My husband is also diagnosed with bulbar onset mnd, he was a serious kind of man but know even though he has no voice left he can...

[Mandy124]

Hi Martha my husband has bulbar on set and has it for 2 years he finds paper and pen quicker for communication he has predictable on an iPad but finds...

[Mandy124]

We bank at First Direct and they are really first class, as my husband has bulbar mnd he has lost his voice and we have come up against this problem quite...

[Mandy124]

Thanks you everyone for your posts,

Love Mandy.

[Mandy124]

My husband was given one of these plugs when he left hospital after the rig operation and as we have an hour and half drive to the hospital if anything...

[Mandy124]

Thanks Ellie and Terry very helpful as usual, we have the rig lady (not a nurse, we were told, lol) coming tomorrow to make sure all is well and to take...

[Mandy124]

My husband uses the surgical tape too, there must be another way, we have looked on-line and they look quite bulky.

[Mandy124]

Just had a peg tube fitted and curious to know what others do with the dangly tube! Is there an easy and comfortable way to secure it out of the way which...

[Mandy124]

Thanks for the link Ellie, will tell him about it he may already know as he is always looking out for things about this and other trials he is looking...

[Mandy124]

Thanks Ellie,

We came away from the Drs with antibiotics, more for a precaution than anything, she did all the checks and I suppose it is...

[Mandy124]

Hi,
I have had such a sore for the past two days, my wife has had the same but for longer.
I have tried paracetomol , saline nebuliser,...