Search Result

[Jaxx]

We have a cough assist machine, but since she’s started taking most sustenance through the peg it doesn’t seem as bad.

[Jaxx]

We have a one on loan through the OT

[Jaxx]

Thank you Ellie, she has an overnight feed of around 750 mls building it up eventually to 1300mls and anything she manages to eat during the day is a...

[Jaxx]

We have a VW caddy that she can drive her power chair into an is more or less between the the two back seats with plenty room behind her for luggage ...

[Jaxx]

Hello Daniel, sorry you find yourself on this forum, hopefully they will diagnose something else, I will keep my fingers crossed, I’m the Mum my daughter...

[Jaxx]

Sadly welcome Dawn, my daughter was also diagnosed Sept 17 at 33 just after having her 2nd baby, people here are very helpful and usually have an answer...

[Jaxx]

My daughter just had peg fitted, going to have feed overnight then try to eat what she can through the day, we are all a bit nervous about it they are...

[Jaxx]

My daughter was a competitive swimmer for 8 yrs and trained around 6 times a week!

[Jaxx]

My daughter just had Botox injected into her salivary glands to hopefully cut down on excess saliva.

[Jaxx]

Hi Louise so sorry you find yourself here, it’s my daughter that has this horrendous disease fairly quickly diagnosed in Sept 17 at the age of 33...

[Jaxx]

What have sufferers got to lose ?

[Jaxx]

My daughter was 33 when diagnosed last year and was on maternity leave when it struck she never returned to work, she did take the driving assessment...

[Jaxx]

Kayleigh thank you for your comments my husband and I are going to stay over on Christmas Eve so I can guarantee she will be in the living room when the...

[Jaxx]

Thank you Kayleigh, I grieve for Jen not being able to read or sing to her baby hold his hand walking back from nursery and all the things young Mums...

[Jaxx]

We have not been told about this just in case kit.