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[Music man's wife]

Chris's MND has always been worse down his right side, what little movement he has now is in two fingers of his left hand.
When he was being diagnosed...

[Music man's wife]

So very sorry to hear about your Dad and I'm so sorry you never got the support you all deserved.

[Music man's wife]

So very sorry to hear this, beautiful photo xxxx

[Music man's wife]

So sorry to hear of Mathews passing, and I'm sorry for the friends he left behind here. Mathew, you will be missed xxxx

[Music man's wife]

So very sorry to hear about the loss of Thomas xxx

[Music man's wife]

Ooh! This was prescribed at the hospice and no mention of compromised breathing though given the nature of the medication that makes sense. He's run out...

[Music man's wife]

Chris has recently started taking Clonazepam, he's having better nights. Still takes baclofen.

[Music man's wife]

I'm so sorry to hear of your loss, please take care xxxx

[Music man's wife]

Just an update. Contacted CHC over their offer to fund 24/7 care for Chris. When I did the sums it would mean his two regular carers and one who works...

[Music man's wife]

Yes that happened to us. Chris's legs gave way using the stand aid and he was slowly being suffocated by the belt. I managed to support him till the ambulance...

[Music man's wife]

Just a thought Tiny. We have employed one of Chris's friends as a carer as we struggle to find anyone to help. His training was arranged through the payment...

[Music man's wife]

Is your care being funded by CHC? That would give you some control. We've never had much to do with Social Services, but what you need is access to funds....

[Music man's wife]

Chris had his assessment for an electric wheelchair before his MND diagnosis, they said it could take up to 9 months to get it. However when the MND diagnosis...

[Music man's wife]

So sorry to hear about your Mum. You were asking about covid. Before the vaccines came out our ventilation unit said they got a few MND patients through...

[Music man's wife]

I've been think of Lynne also, really hoping for the best.