Facial swelling

[Helen82]

Hi everyone
i haven’t posted in such a long time. I hope you are all as well as can be expected. Mum has now got an issue that her head is to...

[Helen82]

I was only thinking of you the other day and wondering how you and your gran were doing. Sorry to hear that things have deteriorated to this point. Thinking...

[Helen82]

Thank you for your reply. I’m going to see my GP - the same one that’s managing mums care. I’ve just got lots of muscle twitching and changes of...

[Helen82]

Thank you lynne. On the one hand I feel silly for jumping to conclusions just because my thigh muscle is twitching but on the other I can’t stop getting...

[Helen82]

Hi
My mum has had MND since March ‘18 (well that’s when symptoms started) and has progressed quickly but she copes amazingly. I am with her...

[Helen82]

Hi everyone. Hope you’re all as well as possible. Mum has started needing NIV for a few hours in the day as well as overnight. She’s thinking of listening...

[Helen82]

Hi rachel123 - just wondering how you are doing? My mum also has MND and it’s a lot to get your head around. How are you all coping now?

[Helen82]

Hi all
The Carers forum has been a bit quiet lately so thoughts I’d start a check in post to see how you’re all doing? 😊

[Helen82]

Thanks Terry and Ellie. No mum hasn’t been approved for funding yet. It’s still considered that her needs are social rather than medical but various...

[Helen82]

Hi everyone
I was wondering how those whose arms are affected manage to go to the toilet? Mum isn’t incontinent as such but can’t pull down...

[Helen82]

Thank you so much for all this advice - it’s amazing! Granted it’ll take me a while to wade through it all but I’m up for a challenge 😉...

[Helen82]

Evening all.
Mums had some days recently where she’s really struggled to walk, even just to transfer from chair to chair. As she lives alone...

[Helen82]

Thanks Broostine. I applied for continuing healthcare but it was refused because they said mums needs are more social than medical (?!). But we met with...

[Helen82]

Thank you Devonmaid. Are direct payments where you find the carers yourself and employ them directly in a private arrangement rather than through a care...

[Helen82]

Thanks for your replies. My thoughts are that a personal assistant may be better and we may look at them being there more than the current carers. I don’t...