Too much Saliva

[Stonehengeman]

There is an organisation called Revitalise who provide respite care for disabled people. I have Progressive Bulbar Palsy and have to eat puréed food...

[Stonehengeman]

Sorry to hear that. I hope that you are getting the necessary care. It comes as a shock when you are first told, I have Progressive Bulbar Palsy which...

[Stonehengeman]

I seem to have got hold of the wrong end of the stick. I did not appreciate (until Ellie has explained) that both Xeomin and NueroBloc are both basically...

[Stonehengeman]

Thank you Ellie for your further response. The best I can do is quote from my Neurologist "We didn't do any injections on 13 Oct 2021 as he didn't...

[Stonehengeman]

Thank you Hakuna for your response. As I have said earlier I am fortunate in some ways. After reading all your posts I appreciate my fortune all the ...

[Stonehengeman]

Thank you Matthew55 for your response but I do not understand your comment that "Radiotherapy is not permanent as advertised". Can you please...

[Stonehengeman]

Thank you John D for your reply. I have no idea of what is involved with RT, so could you let me have more details. I have not discussed it in any depth...

[Stonehengeman]

Thank you Ellie for responding. You are such a wonderful lady responding to almost everyone who contacts Forum. You do not deserve the awful disease...

[Stonehengeman]

I was diagnosed with Progressive Bulbar Palsy in Jan 2018. I had a RIG inserted in Aug 2018, but I haven't used it other than water. My biggest problem...

[Stonehengeman]

Thank you Ellie. I am amazed that you can add so many comments to so many "members" when it all has to be done by eye-gazing. I appreciate that...

[Stonehengeman]

I have made a booking through Revitalise to stay at their Southport Care Home (for 'holidaymakers') for a week from 28th Feb. A week in Southport in...

[Stonehengeman]

I crush my riluzole and add it to my morning porridge. I told my neurologist and he said that was fine.

[Stonehengeman]

I was diagnosed with PBP in Jan 2018, I could speak but it sounded as though I was drunk. Over the following months my speech became unrecognisable. I...

[Stonehengeman]

I have had Bulbar for 4 years, at first I could eat and speak, but now my food has to be puréed and drinks thickened..I had a RIG fitted over 3 years...

[Stonehengeman]

I cannot speak only growl!. I use a Boogie Board to write on. In fact I have 6 - 1 in each room and one in my manbag. You could also use an iPad or any...